SUPPORTING PEOPLE ACROSS MALAWI
Supporting people. Strengthening care. Building awareness.
We are a non-profit organisation committed to improving the quality of life of people living with sickle cell disease in Malawi through awareness, healthcare advocacy, education, counselling, mentorship, community support and partnerships.
MALAWI SICKLE CELL ASSOCIATION
A national association advancing support, care and awareness.
Malawi Sickle Cell Association works to promote understanding, access to appropriate healthcare, support for affected individuals and families, and collaboration with stakeholders.
Stronger, together.
CHOOSE YOUR PATH
Start with what you need.
Clear routes to support, learning, collaboration and reliable information.
01
I have sickle cell
Find healthcare information, community support and ways to connect with the Association.
Find Support →
02
I’m a parent or caregiver
Learn about sickle cell disease, inheritance, care and supporting a child or family member.
Learn About Sickle Cell →
03
I’m a health worker
Access learning opportunities, training and practical resources for stronger care.
Training and Resources →
04
I’m a researcher
Explore research priorities and opportunities to collaborate with the Association.
Research and Collaboration →
05
I’m a donor or organisation
Discuss sponsorship, partnership and ways to support our programs.
Partner With Us →
06
I’m a journalist or government stakeholder
Find reliable information and learn about our advocacy priorities.
Information and Advocacy →
Programs that strengthen care, awareness and opportunity.
- Clinical services improve access to diagnosis and care.
- Advocacy and awareness advance public understanding and policy.
- Counselling and mentorship support wellbeing.
- Training and capacity building strengthen skills.
- Research builds local knowledge.
- Welfare and livelihoods support opportunity.
- Community support connects people and families.
UNDERSTANDING SICKLE CELL
Knowledge helps make support stronger.
Sickle cell disease (SCD) is an inherited blood disorder that affects haemoglobin, the protein in red blood cells that carries oxygen around the body. Some red blood cells can become rigid and sickle-shaped, break down faster than usual or block small blood vessels.
SCD affects people differently. Possible complications include pain episodes, anaemia, infections and problems affecting different organs. Blood testing can identify SCD. This information is for general education and does not replace professional medical advice.
It is inherited
Sickle cell disease is inherited through genes passed from parents to children. It is not contagious and cannot be passed through ordinary social contact.
Care and understanding matter.
Regular clinical follow-up, following an individual care plan and seeking professional help when needed are important. Families and communities can help by learning about SCD and opposing stigma.
LATEST UPDATES
News and activity from our community.
Making room for connection
Community gatherings create space to connect, share experiences and strengthen support.
Learning and speaking up
Awareness grows through shared learning, lived experience and reliable information.
Community support in action
Local activities help people and families build relationships and find support.
Building awareness together
Community conversations can challenge misconceptions and encourage understanding.
Be part of a stronger response.
Together, we can improve support for people affected by sickle cell disease in Malawi.
Partner with us, volunteer your skills or help support programs that advance care, awareness and inclusion.
