OUR TEAM & GOVERNANCE

Working together for people affected by sickle cell disease

The Malawi Sickle Cell Association brings together trustees, staff, volunteers, people living with sickle cell disease, families and partners. Together, we work to strengthen awareness, support and understanding of sickle cell disease in Malawi.

LEADERSHIP AND LIVED EXPERIENCE

Leadership shaped by community experience

People living with sickle cell disease and their families understand the challenges and needs that matter most. Their experiences help guide our work, inform our priorities and keep our programs connected to the community. We value their knowledge and are committed to listening and working together.

OUR STRUCTURE

How we work

Our team brings together different roles and perspectives to support the Association’s mission.

01

Board of Trustees

The Board of Trustees provides organisational oversight and leadership in line with the Association’s governing documents and applicable requirements.
02

Secretariat

The Secretariat coordinates day-to-day organisational work, administration, program delivery, stakeholder engagement and reporting.
03

Volunteers and program contributors

Volunteers and contributors bring their time, skills and knowledge to support approved activities, from community outreach to awareness events.

JOIN THE EFFORT

Contribute skills, experience or community knowledge.

There are many ways to contribute to work that supports people and families affected by sickle cell disease.

Volunteer

Help with approved awareness activities, outreach, events and community initiatives. Contact the Association to discuss current opportunities.

Share expertise

Health professionals, educators, researchers and others can contribute relevant skills and knowledge to support our work.

Build a partnership

We welcome conversations with organisations interested in collaboration, shared learning or supporting our programs.

ACCOUNTABILITY

How we work with care and integrity.

We aim to be transparent, manage resources responsibly and treat the people and communities we serve with respect.

Who can volunteer?

People with a range of skills and experiences can contribute to approved activities. Families and caregivers are also important partners in supporting people living with sickle cell disease. Contact the Association to learn about current opportunities.

Are staff names and biographies published?

We share staff names, roles, biographies and photographs once the information has been verified and approved.

How can an organisation work with us?

Organisations interested in collaboration, shared learning or supporting our work are welcome to contact the Association to start a conversation.