ABOUT THE ORGANISATION

Improving quality of life for people affected by sickle cell disease.

Malawi Sickle Cell Association is a non-profit organisation committed to improving the quality of life of people affected by sickle cell disease in Malawi. We recognise that sickle cell disease can affect health, education, employment, family life, emotional wellbeing and financial stability. Our work brings together awareness, healthcare advocacy, education, counselling, mentorship, community support and partnerships.

OUR MISSION

Advocating for lasting, holistic support.

To advocate for permanent biopsychosocial support for people living with sickle cell disease in Malawi by promoting healthcare access, awareness, counselling, social support and partnerships.

Our goal: To collaborate with the Government of Malawi and other stakeholders in addressing sickle cell disease and related health and social challenges.

OUR VISION

A Malawi where people with sickle cell disease are understood, respected and supported.

To improve the quality of life of people living with sickle cell disease in Malawi through adequate healthcare services and multidisciplinary support that promotes wellbeing and livelihoods.

OUR CORE VALUES

Principles that guide our work.

Compassion: Recognising the experiences and needs of people living with sickle cell disease and their families.
Dignity and respect: Promoting equal treatment and opposing stigma and discrimination.
Accountability: Using resources responsibly and communicating honestly about our work.
Collaboration: Working together with patients, families, healthcare providers, government and partners.
Inclusion: Considering medical, emotional, social and economic needs.
Integrity: Acting ethically and serving responsibly.

HOW WE WORK

Community knowledge, collaboration and accountable action.

People living with sickle cell disease and their families are central to our work. We aim to listen to their experiences, share reliable information and encourage respectful, practical support.

We work with healthcare providers to advocate for improved screening, diagnosis, treatment, counselling and continuing care. We also engage government institutions, civil society, educational institutions, researchers and development partners around shared priorities.

Through community participation and partnerships, we seek to strengthen services, build capacity, promote inclusion and support a coordinated response to sickle cell disease in Malawi.

OUR OBJECTIVES

A coordinated response to health and social needs.

01

Promote awareness

Increase public understanding of sickle cell disease, including its causes, inheritance, symptoms, management and prevention of complications.

02

Advocate for healthcare

Encourage improved access to appropriate screening, diagnosis, treatment, counselling and continuing care for people living with sickle cell disease.

03

Support patients and families

Promote emotional, social and practical support for affected individuals, parents, caregivers and families.

04

Strengthen partnerships

Work with government departments, healthcare facilities, educational institutions, civil society organisations and development partners.

05

Build capacity

Encourage training and information-sharing among community members, healthcare workers, educators and other relevant stakeholders.

06

Encourage research and learning

Support appropriate research, information-sharing and evidence-informed approaches to improving sickle cell services in Malawi.

Malawi Sickle Cell Association

Explore

Connect