RESOURCES & DOWNLOADS
Reliable information for people, families and professionals.
Explore educational and organisational resources from the National Sickle Cell Support Group Association. This page is for people living with sickle cell disease, parents, caregivers, healthcare professionals, educators, researchers and the wider public.
LEARN AND SHARE
Materials for education, care and awareness.
Find information about sickle cell disease, guidance for families and caregivers, approved awareness materials and organisational publications. Resources will be added as they become available and are approved for public sharing.
Educational resources support general understanding and do not replace individual medical advice from a qualified healthcare professional.
FEATURED RESOURCES
Explore information and learning materials.
Learn how sickle cell disease and sickle cell trait differ and how inheritance works. A qualified health professional can explain individual test results.
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Understanding sickle cell disease
Understand common signs, possible complications and the role of appropriate blood testing and early diagnosis.
02
Inheritance and sickle cell trait
General information about living with SCD, clinical follow-up and supportive environments.
03
Symptoms and diagnosis
Information for families and caregivers will be listed as approved materials become available.
04
Living well with sickle cell disease
Resources on supporting children and young people at home, in education and in healthcare.
MORE RESOURCES
Resources for families, health workers and communities.
General educational materials on pregnancy and emotional and social wellbeing will be listed when reviewed and approved.
05
Information for parents and caregivers
Resources to support inclusion, understanding and communication in schools and workplaces.
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Sickle cell and children
Training and information for health workers will be listed when available and approved for sharing.
07
Pregnancy and wellbeing
Approved posters, brochures and fact sheets can be added for public awareness and community education.
08
Education and employment
Research publications and reports will be linked where suitable for public release.
09
Health worker learning
Annual reports, newsletters and program updates will be shared when available and approved.
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Awareness materials
Materials are organised for public education and professional learning; check the publication and review date before reuse.
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Research and reports
For recognised general information, see the WHO sickle cell disease overview. Local clinical guidance should come from qualified health professionals.
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Association publications
Contact the Association to ask about approved materials or suggest a resource topic.
