philllip

Misunderstandings about sickle cell disease can leave people feeling isolated. In this story, community members take part in an awareness activity and learn that sickle cell disease is inherited and is not contagious. The conversation gives people a chance to…

Supporting a family member with sickle cell disease can involve listening, helping with everyday tasks and being there during challenging moments. In this story, a caregiver learns that support starts with asking what the person needs, rather than making assumptions.…

School is an important part of growing up, but managing sickle cell disease alongside lessons and activities can sometimes be difficult. In this story, a student and their family talk with school staff about what support may help during the…

Living with sickle cell disease can mean balancing everyday plans with the need to pay attention to your health. School, work, family life and time with friends all matter, but symptoms and appointments can sometimes interrupt the routine. For this…